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Children's Disability List of Mailing Lists

Children's Disability Lists of Lists

The Children's Disability List of Lists provides an annotated list of Support Groups for families of children with disabilities and special needs. Each disability mailing and support group list is validated for usefulness and family orientation.

Page 1 Disability Lists/Groups Page 2 Disability Lists/Groups
ADD & ADHD List Groups
Adoption ListGroups
Allergies & Asthma List Groups
Autism, Aspergers & PDD Groups
Birth Defects (Congenital) Groups
Down Syndrome List Groups
Feeding Support List Groups
General Childrens Disabilities Groups
Genetic Disorders


Learning & Education List Groups

Motor & Movement Groups
Neurological Brain Injury
Obsessive Compulsive Disorder (OCD)
Premature Birth List Groups
Sensory Integration Groups
Speech & Communication Groups
Vision Impairment List Groups


Children's Disability List of Mailing Lists

ADD/ADHD Support Groups

ADD ADHD Parents
Mailing list that addresses Attention Deficit or Attention Deficit/Hyperactive Disorder in children, teens & adults, along with other Disorders (OCD, ODD, CAPD, Downs). Through sharing of experiences we can learn from each other to help our children to become productive adults.
To Join: Send a blank email to ADD-ADHD-Parents-subscribe@yahoogroups.com or join online.
Listowner: Cindy Shook

ODD Parents Room
Open group for parents of kids with Oppositinal Defiant Disorder (ODD), Conduct Disorder (CD), Attention Deficit Disorder (ADD/ADHD) and various other behavior and mental disorders. A place for parents to relax!
To Join: Send a blank email to oddparentsroom-subscribe@yahoogroups.com or join online.

ADHD Children
This group is for Parents who want to talk about their childs ADHD problems.
To Join: Send a blank email to ADHD_Children-subscribe@yahoogroups.com or join online.

Children with ADHD
Attention Deficit Hyperactive Disorder in children is frustrating and exhausting to the child and the family. Schools find these kids generally a burden, and often lack the understanding, skills and training to effectively deal with and help kids with ADHD succeed. We need to support one another through discussion of what works, what doesn't, medications, and all those issues that surface when loving a child who has the disease of ADHD. . . and it is a disease.
To Join: Send a blank email to Children-with-ADHD-subscribe@yahoogroups.com or join online.

ADHD Parents Support Group
A large parent support group for parents whose children who have ADHD. Open forum.
To Join: Send a blank email to adhdparentssupportgroup@yahoogroups.com or join online.

NIDS (Neuro Immune Dysfunction Syndromes
From Dr. Michael Goldberg, this information and support forum is for families affected by Neuro Immune Dysfunction Syndromes. Our focus includes: Autism / ASD, Asperger's / AS, PDD, ADD/ADHD, CF / CFIDS / ME and others -- who are following or considering following the NIDS protocol.
To Join: Send a blank email to NIDS@yahoogroups.com or join online.

001 ADD-ADHD
This restricted member support group is for parents who have school-aged children living in their home with ADHD, as well as other disabilities.
Listowner: Kimberly Zim
To Join: Send a blank email to 001add-adhd@yahoogroups.com or join online.

Adoption Support Groups

Go to the Directory of Adoption Support Lists

Allergy & Asthma Support Groups

Asthma Parents
Mailing list provided by Ed's Asthma Track for parents of children with asthma to discuss their questions and concerns.
To Join: Send a blank email to asthma-parents-subscribe@yahoogroups.com or join online.

Families Dealing with Asthma
A group for parents or members of families including children who have asthma. A place to ask questions, offer advice, vent, celebrate,and commiserate with other families who have "Been There, Done That"...
To Join: Send a blank email to Families_Dealing_with_Asthma-subscribe@yahoogroups.com or join online.

Allergy
Allergy discussion group. Not a family mailing list, but may be of interest to family members. Moderated.
To Join: Send an email with the message SUBSCRIBE ALLERGY YourFirst Name YourLastName to LISTSERV@listserv.uark.edu or join online.
Listowner: Ballew Kinnaman

Eczema
A large international support group for eczema, based in the United Kingdom.
To Join: Send an email with the message SUBSCRIBE ECZEMA to LISTSERV@LISTSERV.ICORS.ORG or join via online.
Listowners: David Hough, Stuart Purdie, Brigit van Loggem, and Paula Ford

Eczema Parents Circle
A discussion group for parents of children with eczema. Having a child who suffers from eczema is sometimes difficult, and we as parents feel isolated from those who haven't "been there". This is a place to express how eczema has affected you as a parent as well as listen to others share their emotions and experiences.
To Join: Send a blank email to Eczemaparentscircle-subscribe@yahoogroups.com or join online
Listowner: Darlene Searle

Cel Kids (Celiac Kids)
Celiac/Coeliac Wheat/Gluten-Free children list. (There is also an adult list).
To Join: Send email with the message, SUBSCRIBE CEL-KIDS FirstName LastName to LISTSERV@LISTSERV.ICORS.ORG or join online.

No Milk
Milk, Casein and Lactose-Free List. Includes families and individuals on these diets.
To Join: Send an email with the message SUBSCRIBE NO-MILK to LISTSERV@LISTSERV.ICORS.ORG or join online.
Listowner: Max Desorgher

Autism / Aspergers / PDD Support Groups

Asperger
Mailing list for discussions of all aspects of Asperger Syndrome (AS) and other forms of high-functioning autism, including Pervasive Developmental Disorder (PDD). Subscription requires owner approval. A high volume list.
To Join: Send email with the message, SUBSCRIBE ASPERGER to listserv@listserv.icors.org or join online.
Listowners: Head Listowner - Ellen Dietrick; Co-listowners - Karen Reznek, Sandy Sebree, Phil Schwarz , Dave Spicer, Tee Forshaw, Barry Conner

Autism
Tthe oldest ongoing discussion list for autism, provides general autism support.
To Join: Send email with the message subscribe [password] [digest|nodigest] [your email address] to autism-request@lists.apana.org [Commands in brackets are optional.]
or join online.
Listowner: Carolyn Baird. Panel Representatives: Ray Kopp, Linda Carlton, Kevin Kramer

Autinet
An unmoderated parent support group and news service for Autism and Asperger's Syndrome, running since 1996.
To Join: Send the message with "SUBS" in the subject line to autinet@autinet.org. In your message to listowner Peter Wise include a little about yourself, your interest in Autism and Asperger's Syndrome, and your COUNTRY of residence (for statistical reasons).

Aspergers Support
Mailing list for parents of children with Asperger's Syndrome or High Functioning Autism.
To Join: Send a blank email to AspergersSupport-subscribe@yahoogroups.com or join online.

PDD BP KidS (Pervasive Development Disorder Bipolar Kids)
This group is for parents and primary caregivers of children diagnosed with PDD (Pervasive Developmental Disorder), Autistic Spectrum Disorder (Autism, Asperger's Syndrome, PDD-NOS, Rhett's Syndrome, Childhood Disintigrative Disorder), and BP (Bipolar Disorder).
To Join: Send a blank email to PDD-BPkids-subscribe@yahoogroups.com or join online.

Home Schooling Aspies
Support list for Christian moms who homeschool (or are seriously considering homeschooling) their children who have been diagnosed with Asperger's Syndrome (or suspect their child has Asperger's Syndrome). All are welcome to join, but there will be a Christian focus to many of the posts. We are here to encourage, support, and pray for one another as we do our best to teach our Aspies at home.
To Join: Send a blank email to homeschoolingaspies-subscribe@yahoogroups.com or join online.

Aut-2B-Home (Autism To Be Homeschooled)
Listserv for homeschooling children with autism.
To Join: Send email with the message, SUBSCRIBE AUT-2B-HOME to LISTSERV@LISTSERV.ICORS.ORG or join online.

Autism Awareness Action
A moderately high volume group to help parents find autism related resources and support, not state specific but is associated with a Texas autism group.
To Join: Send a blank email to autism-awareness-action-subscribe@yahoogroups.com or join online.

Autism Aspergers
A high quality, high volume support list where parents share stories, treatments, therapies, ideas, advice and support about their children with moderate to high functioning autism or Aspergers syndrome.
To Join: Send a blank email to Autism-Aspergers-subscribe@yahoogroups.com or join online.

Parenting Autism
An excellent, high volume parent support group to share the day-to-day experience of being a parent of an autistic child.
To Join: Send a blank email to Parenting_autism-subscribe@yahoogroups.com or join online.

Autism Behavior Problems
Helpful discussion, aid and support in dealing with these behaviors present in the autistic child. Support on topics for all ranges of behaviors...self stimulating, self injurious, aggressive, inappropriate etc and different ways of addressing these problems.
To Join: Send a blank email to AutismBehaviorProblems-subscribe@yahoogroups.com or join online.

Autism in Girls
Restricted membership! This is a high quality list for parents and professionals who wish to exchange information regarding treatment of autism in girls, how autism effect females in the family, and any other issues dealing with autism and females and/or the comparison of males and females with autism.
To Join: Send a blank email to Autism_in_Girls-subscribe@yahoogroups.com or join online.

Autism Adolescence
Autism Spectrum Disorders and adolescence support for parents who have Pre Teen, or teenaged children. Though all are welcome here. Please free to share your stories, advice, woes, rants, tears, and especially laughter here with us.
THIS IS A HIGH VOLUME LIST.. http://www.geocities.com/alleycatjo/Autism.html
Awaiting review.

Children with Autism
High volume parent support list for autism.
To Join: Send a blank email to children_with_autism-subscribe@yahoogroups.com or subscribe online.

Floortimers Floor Timers
A small group, but an important topic. Parents, caregivers, therapists, educators and related professionals who work with children using using a floortime approach share ideas and provide support for one another.
To Join: Send a blank email to floortimers-subscribe@yahoogroups.com or join online.

HDO Therapy for Autism
Hyperbaric Oxygen Therapy (HBOT), or more accurately, High Dosage Oxygen Therapy (HDOT} is fast becoming one of the more successful therapies for children with Autism. Autism is a neurological injury whether caused by toxicity, birth injury or unknown. Some amazing results are being obtained, especially with young children.
To Join: Send a blank email to HDOTherapyforAutism-subscribe@yahoogroups.com or join online.

Verbal Behavior
A high volume moderated forum for teaching verbal behavior (VB) within a program of applied behavior analysis (ABA). Discussions include difficulties in the development of communication seen in most individuals with autism and other related disabilities, with an emphasis on functional language and motivational variables using ABA techniques.
To Join: Send a blank email to VerbalBehavior-subscribe@yahoogroups.com or join online.
Listowner: Christina Burk ChristinaBurkABA@aol.com

Autism ABA
The Autism and ABA list is an open, unmoderated forum for discussing anything related to autism. Much of our discussion centers around Applied Behavior Analysis (ABA), including areas of ABA such as teaching Verbal Behavior (VB) and Natural Environment Training (NET). We're a quiet list, but we have a healthy mix of parents, professionals, and others involved with autism in some way.
To Join: Send a blank email to autismaba-subscribe@yahoogroups.com or join online.
Listowner: Christina Burk ChristinaBurkABA@aol.com

DTT-NET (Autism: AVB: ABA: Verbal Behavior)
A moderated list for parents and professionals running home (and school) programs to discuss concerns and share their knowledge of Applied Verbal Behavior (AVB), a specialty within the field of Applied Behavior Analysis (ABA).
To Join: Send a blank email to DTT-NET-subscribe@yahoogroups.com or join online.
Listowners: Jenn Godwin and Steph Hulshof

ANDI_ADI (Autism Network for Dietary Intervention)
This is an ADVANCED autism-diet discussion group moderated by ANDI, the Autism Network for Dietary Intervention. The purpose of this list is to provide a forum for discussion regarding advanced dietary treatment options such as the Specific Carbohydrate Diet (SCD), the Body Ecology Diet (BED), grain-free, sugar-free, low oxalates, supplementation, and other dietary interventions for children with autism spectrum disorders.
To Join: Send a blank email to ANDI-ADI-subscribe@yahoogroups.com or join online.

GF CF Kids (Gluten-Free Casein-Free Kids)
This high volume, unmoderated list provides discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets.
To Join: Send a blank email to GFCFKids-subscribe@yahoogroups.com or join online.

Enzymes and Autism
The Enzymes and Autism forum is a high volume list for the discussion of digestive enzymes (and many other types of supplements) and thier effect on the autistic spectrum/PDD, attention deficit, sensory integration, digestion/malabsorption, and food sensitivities/allergies.
To Join: Send a blank email to EnzymesandAutism-subscribe@yahoogroups.com or join online.

Chelating Kids 2
A restricted discussion list of parents with children who have autism/ mercury poisoning and are using chelation.
To Join: Send a blank email to chelatingkids2-subscribe@yahoogroups.com or join online.
Listowner:

Gluten-Free Casein-Free Recipes
High volume group to share recipes for cooking a gluten-free, casein-free diet for chidren.
To Join: Send a blank email to GFCFrecipes-subscribe@yahoogroups.com or join online.

ABMD (Autism BioMedical Discussion)
High volume group for discussions by parents and professionals of research and biomedical interventions as they apply to the investigation and treatment of autistic spectrum disorders.
To Join: Send a blank email to abmd-subscribe@yahoogroups.com or join online.

Brain Injury Support Groups - see Neurological / Brain Impacts

Birth Defects / Congenital Support Groups

Cleft TAlk
Mailing list for families who have children born with cleft palate or cleft lip defects.
To Join: Send the message, SUBSCRIBE CLEFT_TALK2 Your Real Name to majordomo@bmtmicro.com
Listowner: Joanne Green

Cleft Chat
For parents of children born with cleft lip and/or cleft palate. Our list is open to all to freely express their feelings, get support and to learn in a positive environment.
To Join: Send a blank message to cleftchat-subscribe@yahoogroups.com or join online.

FAS Link (Fetal Alcohol Syndrome)
Mailing list for people interested in Fetal Alcohol Syndrome/Fetal Alcohol Effects.
To Join: Send the message, SUBSCRIBE FASLINK to majordomo@listserv.rivernet.net
Listmoderator: Bruce Ritchie

PD Heart (Pediatic Heart)
Active mailing list for families of children with Congenital Heart Defects (CHD) and Childhood Onset Heart Disease. (The Children's Health Information Network has a number of other pediatric heart lists. A complete set of their lists is at http://tchin.org/support/index.htm )
To Join: Send a blank message to: pdheart-on@tchin.org.or join online.
Listowner: Mona Barmash

CHD Families (Congenital Heart Defects)
A support group for resources and support for parents, grandparents and siblings of children born with Congenital Heart Defects. Affliated with Families Raising Awareness of CHD, One Heart At A Time.
To Join: Send blank email to CHDFamilies-subscribe@yahoogroups.com or join online.

Down Syndrome Groups

Down Syn (Down Syndrome)
A well established and active list for discussion of Downs Syndrome. Members include parents, siblings, other relatives, friends, therapists, physicians, and of course people with Down Syndrome.
To Join: Send an email with the message, SUBSCRIBE DOWN-SYN Your Real Name to LISTSERV@LISTSERV.NODAK.EDU or subscribe online
Listowner: Bill McGarry

Ups N Downs (Families Involved with Down Syndrome)
An international support group for family members of people with Down syndrome, in existence since 1995. The focus is on the family and not just the family member with Down syndrome.
To Join: Send a blank email to UpsNDowns-subscribe@yahoogroups.com or subscribe online.

DownSyn Forum (Down Syndrome for New Parents)
An active open, moderated web based board for parents of children with Down Syndrome. Topics include prayer requests, education, PDD/autism, open discussion and more. To join, visit the DownSyn forum at http://www.downsyn.com/phpbb2/index.php

Downs Heart
Support and information for those whose child is facing heart surgery, who has had surgery, those whose condition is inoperable, and those families who are bereaved. This online community is linked to Down's Heart Group, a UK charity which provides support and information related to the cardiac issues associated with Down's Syndrome.
To Join: Send a blank email to Downs-Heart-subscribe@yahoogroups.com or subscribe online.

Mosaic DS · Mosaic Down Syndrome
A support list for parents whose babies/children/adult children have been diagnosed with Mosaic Down Syndrome.
To Join: Send a blank email to MosaicDS-subscribe@yahoogroups.com or subscribe online.

Down Syndrome
A list for parents of children with Down Syndrome to brag, talk about concerns, medical problems, schooling,therapy, and so on. A good group for parents of young chidren but apparenlty unmoderated.
To Join: Send a blank email to down_syndrome-subscribe@yahoogroups.com or subscribe online.

Homeschooling and Down Syndrome
Discussion list for families who are homeschooling or want to homeschool their child with Down Syndrome.
To Join: Send a blank message to homeschoolinganddownsyndrome-subscribe@yahoogroups.com or subscribe online.

DS-Autism (Down Syndrome & Autistic Spectrum)
DS-Autism is a discussion list for families, parents, and professionals interested in the dual diagnosis Down Syndrome and Autism. The list is a service of the Down Syndrome & Autism Internet Information Center and Creating Solutions.
To Join: Send a blank email to ds-autism-subscribe@yahoogroups.com or subscribe online.
Listowners: Joan Guthrie Medlen, Donna Duffey, and Mary Beth Pilewski Paul.

Feeding Support Groups

G Tube
Support for those using feeding tubes (g-tubes etc.). Gtube is an unmoderated discussion and support group for family, caregivers and professionals who are working with people of all ages who have, have had, or are about to have, a feeding gastrostomy (g-tube) J-tube, NG-tube or GJ-tube.
To Join: Send the message SUBSCRIBE GTUBE YourFirstName YourLastName to listserv@listserv.syr.edu or join online.
Listowner: Ward Scarf

Feeding
A great resource for parents of infants and young children with feeding disorders, especially those related to disability, premature birth or other developmental issues. Parents share information on medical treatments, feeding tips, and products.
To Join: Send a blank email message to feeding-subscribe@yahoogroups.com or join online.
Listowner: Laura Williams

Breastfeeding Reflux
A discussion group to provide support and share experiences with those who are breastfeeding a baby with reflux and GERD. All moms of refluxers are welcome, regardless of the amount you are breastfeeding, the degree of reflux, or the age of your baby.
To Join: Send a blank email message to breastfeedingreflux-subscribe@yahoogroups.com or subscribe online.

Reflux Parents
For parents with older children (over 4 years) suffering from Gastroesophageal Reflux or related motility disorders.
To Join: Send a blank message to RefluxParents-subscribe@yahoogroups.com or join online
Listowner: Nancy Dougherty

Reflux Toddlers
For parents of children ages 2 - 4 years old suffering from GERD and related motility disorders.
To Join: Send a blank message to RefluxToddlers-subscribe@yahoogroups.com or join online
Listowner: Nancy Dougherty

Reflux Moms 5
For moms with babies under 2 years of age, suffering from Gastroesophageal Reflux Disorder.
To Join: Send a blank message to Refluxmoms5-subscribe@yahoogroups.com or join online.
Listowner: Nancy Dougherty

GERD Support (Gastroesophageal Reflux Disease)
Support group for people with the painful disease GERD (acid reflux disease/heartburn) or those giving support to someone with GERD. This group is for adults - not children - but is relatively friendly and informative and not over run by spammers.
To Join: Send a blank message to gerdsupport-subscribe@yahoogroups.com or join online.

Infectious Diseases Support Groups

CMV (Cytomegalovirus)
Cytomegalovirus (CMV) is a herpes type virus with complications ranging from unnoticed to devastating, especially dangerous to a developing fetus. To list a few: death, miscarriage, intracranial calcification, Cerebral Palsy, seizure disorder, deafness, visual impairment, profound delays and mental retardation, microcephally, mal-absorption difficulties, feeding difficulties, CMV retinitis.
To Join: Write to listserv@listserv.syr.edu and put CMV in the body of the post or join online.
Listowner: Tina Konczol

GB Strep (Group B Streptococcus)
Group B Streptococcus (GBS) is a bacteria that is found in the in the vagina and/or lower intestine of 10-35% of all healthy, adult women. Approximately 8,000 babies in the U.S. contract serious GBS disease each year. Up to 20% of the babies who survive GBS-related meningitis may develop serious handicaps, including hearing or vision loss, varying degrees of physical and learning disabilities, and cerebral palsy.
To Join: Send blank email to gbstrep-subscribe@yahoogroups.com or join online.

Hepatitis-B
A mailing list where information and support regarding hepatitis B can be shared in an atmosphere of compassion and friendship. List members include those who are Hepatitis B sufferers, their family or friends, or any other interested parties.
To Join: Any message sent to HEPATITIS-B-ON@MAIL-LIST.COM will start the subscription process.
Listowners: Steve Bingham, Sheree Martin

P Kids-List
The primary mailing list for parents of kids with chronic viral infectious diseases.
To Join: Send the message SUBSCRIBE to PKIDS-LIST-REQUEST@MAIL-LIST.COM or join online.

General Children's Disabilities (Special Needs Parenting)

Our Kids
An excellent, well-established support group for parents of children with physical and/or mental disabilities and delays.
To Join: In the body of your email, send the message, SUBSCRIBE OUR-KIDS Your Real Name to listserv@listserv.syr.edu or join online.
Listowner: Randy Ryan

Birth to Three Support
Support for parents and professionals in Birth to Three Programs or Early Intervention or ECI programs.
To Join: Send a blank message to BirthtoThreeSupport-subscribe@yahoogroups.com or join online.
Listowner: Bridget A. Bailey

Special Child Exchange Equipment Board
Discussion group and equipment exchange group to buy, sell, trade or donate equipment for special needs children. Helps families locate necessary medical supplies and/or durable medical equipment that is not being utilized. To Join, visit http://groups.yahoo.com/group/SCE-Equipment/

Child Dev Delays (Children with Developmental Delays)
Mailing list for parents of a child (or children) with developmental delays (speech and language, motor, cognitive, sensory, emotional and social, etc.).
To Join: Send a blank message to childdevdelays-subscribe@yahoogroups.com or join online.

Parents of Severely Disabled Kids
A support group for parents and families of children who are Severely/Profoundly disabled. Parents can find support for different disabilities including Cerebral Palsy Developmental Delays, Failure to Thrive, Feeding Tubes, Mentally Impaired, special needs, Spina Bifida, Seizures, Brain Injured, Scoliosis, CMV, Microcephaly, and many others as well.
To Join: Send a blank message to ParentsofSeverelyDisabledKids-subscribe@yahoogroups.com or join online.
Listowners: Judy, Lynne, and Christine

Rare Dis (Rare Disorders)
Rare Disorders mailing list for resources on any rare disorder and/or to network with other people with the same disorder. Not very active, but you can read the archives and if you post a question you will likely receive an answer.
To Join: Send the message, SUBSCRIBE RARE-DIS Your Name to LISTSERV@LISTSERV.ICORS.ORG or join online.
Listowner: Bill McGarry

CP-SK : Christian Parents Special Kids
A support group for Christian Parents parenting children with a wide variety of special needs.
To Join: Send a blank message to CP-SK-subscribe@yahoogroups.com or join online.
Listowner: Lisa Little

Our Special Needs Children
Support group for parents of Special Needs Children, who have any of the following: Hypotonia, Speech Language Disorders, Apraxia, Dyspraxia, Developmental Delays, Sensory Integration Dysfunction, APD, Autistic Tendencies, PDD. I want this to be a place to share information, such as new treatments, supplements, diets, therapies, doctor recommendations, or just to ask advice or get support.
To Join: Send an email to OurSpecialNeedsChildren-subscribe@yahoogroups.comn or join online.

Special Child Exchange
A place to trade, sell, or donate special needs equipment and related baby and children's supplies.
To Join: Send an email to SpecialChildExchange-subscribe@yahoogroups.comn or join online.
Listowner: Steve Gay

Genetic Support Groups

Families of Angelman Syndrome
A place for families to talk about Angelman Syndrome and give each other support on raising a child with Angelman Syndrome.
To Join: Send a blank email to familiesofangelmansyndrome-subscribe@yahoogroups.com or join online.

ARPKD (Autosomal Recessive Polycystic Kidney Disease)
This list is for anyone who's lives have been affected by ARPKD Autosomal Recessive Polycystic Kidney Disease. Autosomal recessive polycystic kidney disease (ARPKD) is the most common heritable cystic renal disease occurring in infancy and childhood.
To Join: Send a blank email to ARPKD-subscribe@yahoogroups.com or join online.

Cystic L (Cystic Fibrosis List)
Exchange of information and support specific to cystic fibrosis. Members include people with CF and those who share their lives: medical professionals, scientists, researchers, parents, grandparents, spouses, siblings, friends and significant others.
To Join: Send an email with the message SUBSCRIBE CYSTIC-L Your Real Name to LISTSERV@PEACH.EASE.LSOFT.COM or subscribe online.

Ped PID (Pediatric Primary Immune Deficiency)
This list brings together parents and caregivers of children affected by a Primary Immune Deficiency.
To Join: Send a blank email to PedPID-subscribe@yahoogroups.com or subscribe online.

Panhypopituitarism
This list is for parents and caregivers who have children with pituitary disorders. Discussion may also include disorders of the endocrine system, hypoglycemia, growth hormones and steriods.
To Join: Send a blank email to panhypopituitarism-subscribe@yahoogroups.com or join online.

Pierrerobin · Pierre Robin Network
Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with Pierre Robin Syndrome.
To Join: Send a blank email to pierrerobin-subscribe@yahoogroups.com or join online.

Rare Genetic Disorders (Triple X or Trisomy X Syndrome)
This is a group for parents, parents-to-be, other family members, and the women themselves to share regarding the diagnosis of an extra X.
To Join: Send a blank email to raregeneticdisorders-subscribe@yahoogroups.com or join online.

Tri-Med
Discussion of medical issues related to Trisomy chromosmal disorders. The Trisomy Online also provides 5 different lists for Trisomy 18, Trisomy 13 and other related chromosomal disorders. Visit their website to see each topic.
To Join: Send an e-mail to Tri-Med-request@freelists.org with the word SUBSCRIBE in the subject line or join online.
Listowner: Karen Schuler

Torticollis Kids
For parents and caregivers of children with congenital muscular torticollis (CMT) to share information and ideas.
To Join: Send a blank email to Torticolliskids-subscribe@yahoogroups.com or join online.

TS Parents-3 (Turner Syndrome Parents)
A discussion group for parents of children with Turner Syndrome, a genetic disorder that affects about one in every 3000 girls.
To Join: Send a blank email to TSParents-3-subscribe@yahoogroups.com to or join online.

Go to Page 2 of Children's Disability Lists.

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