Children's Disability List of Lists
This is page two of the Children's Disability
List of Lists - a validated directory of discussion lists, forums,
support groups, listservs and mailing lists for families of children with
disabilities and special needs.
Learning & Education Mailing Lists
Reed
Martin Sped Law (Special Education Law)
This was a fantastic resource - a discussion list of special education
laws and advocacy techniques from Reed Martin, J.D. But it became a pay-for
service in 2008, so I do not know if it remains as good as it was.
To Join: Pay $15 at http://www.websitetoolbox.com/mb/power.
SpedTopics (Special Education Topics)
Psychology and psychiatry article summaries are posted routinely on this
listserv for the special education community.
To Join: Send a blank email to SpedTopics-subscribe@yahoogroups.com
or join online.
IEP Guide (Individual Education Plan)
High volume group with reprinted articles, links and support for IEP,
Special education, 504 ,etc. Be aware that you will receive by email an
avalanche of archived files on the IEP process, upon joining.
To Join: Send a blank email to IEP_guide-subscribe@yahoogroups.com
or join online.
Dyspraxia
Families
This British support group has been formed as a bridge for parents of
dyspraxic children and adults with dyspraxia, based on the adult Dyspraxia
Chat List. Dyspraxia (Apraxia) is the generic term used to cover a heterogeneous
range of disorders affecting the initiation, organization and performance
of action. Dyspraxia is also known as developmental coordination disorder
and may also be present in people with autism spectrum disorder, dyslexia
and dyscalculia, among others. It is a learning difficulty resulting from
an immaturity of the way the brain processes information, so that messages
not being fully transmitted to the body.
To Join: Send a blank email to DyspraxiaFamilies-subscribe@yahoogroups.com
or join online.
Dyslexia Support
Mailing list is for the discussion of dyslexia to exchange ways of helping
school aged children. Open archives.
To Join: Send a blank email to DyslexiaSupport-subscribe@yahoogroups.com
or join online.
Dyslexia Support 2
This list is a support list for parents of children who are dyslexic.
To Join: Send a blank email to DyslexiaSupport2-subscribe@yahoogroups.com
or join online.
Listowner: Annette Marshall
GT-Special
(Gift Talented Special)
A support mailing list for parents of children who are gifted and also
have a learning disability and/or other neurological problem(s).
To Join: Send an e-mail with the message subscribe gt-special to listserv@listserv.icors.org
or join online.
GT-Spec-Home (Gifted
Special Needs Homeschooling)
Home-schooling gifted children with special needs.
To Join: Send an e-mail with the message SUBSCRIBE GT-SPEC-HOME to listserv@listserv.icors.org
or join online.
HKWD
(Homeschool Kids with Disabilities)
The mailing list for issues related to teaching a child with any special
educational need at home.
To Join: Send an empty message to hkwd-subscribe@yahoogroups.com
or join online.
Listowner: Maaja
Homeschooling Extraordinary Kids
For parents of children who are gifted in one or more areas but also have
a learning difficulty, autism, etc..
To Join: Send an empty message to HomeschoolingExtraordinaryKids-subscribe@yahoogroups.com
or join online.
Motor Impairment Mailing Lists
Bifida-L
The original mailing list for people with spina bifida as well as parents,
siblings, and others.
To Join: Send a blank email to bifida-l-subscribe@yahoogroups.com
or join online.
SB Moms N Dads (Spina Bifida Moms and Dads)
Support list for families and caregivers of children with spina bifida
and adults with spina bifida. An active list.
To Join: Send a blank email to
SBMoms-N-Dads-subscribe@yahoogroups.com or join online.
Listowner: Kim Zink
Dysgraphia
This list is for parents that have children with dysgraphia (difficulty
with handwriting).
To Join: Send a blank email to dysgraphia-subscribe@yahoogroups.com
or join online.
C-Palsy (Cerebral Palsy)
Listserv for parents who have a child with Cerebral Palsy.
To Join: Send an email with the message, SUBSCRIBE C-PALSY Your Name to
listserv@listserv.icors.org
or join online.
Listowner: Bill McGarry
CP PARENT (Cerebral Palsy
Parent)
Listserv for parents who have a child with Cerebral Palsy.
To Join: Send an email with the message, SUBSCRIBE CPPARENT Your Name
to listserv@listserv.syr.edu
or join online.
Listowner: Paul Sheridan
Hemi
Kids (Hemiplegia Kids)
Listserv for parents of children with hemiplegia (a type of cerebral palsy)
or parents of children who have had a pediatric stroke.
To Join: Send an email with the message Subscribe HEMI-KIDS Firstname
Lastname to listserv@listserv.icors.org
or join online.
Listowner: Nancy
I-CAN
International Child Amputee Network
Listserv for parents of child amputees and adults who are congenital or
early acquired amputees.
To Join: Send an email with the message, SUBSCRIBE I-CAN Firstname Lastname
to listserv@listserv.icors.org
or join online.
Listowners: Bill Baugh
Kid
Power
Support group for parents whose children are mildly affected by cerebral
palsy or other disabilities.
To Join: Send a blank email to KidPower-subscribe@yahoogroups.com
or join online.
Listowner: April Hernandez
Neurological Brain Impacts Mailing Lists
Childhood
Epilepsy
Active mailing list to support parents and other care-givers of children
diagnosed with a form of epilepsy.
To Join: Send a blank email to childhoodepilepsy-subscribe@yahoogroups.com
or join online.
Parents of Children with Epilepsy
A parent group for childen with epilepsy.
To Join: Send a blank email to Parents-of-Kids-with-Epilepsy-subscribe@yahoogroups.com
or join online.
PVL (PeriVentricular Leukomalacia)
A high quality mailing list for parents of children with Periventricular
Leukomalacia.
To Join: Send a blank message to pvl-subscribe@yahoogroups.com
or join online.
Listowner: Maureen Schneeberger
Hydranencephaly
Mailing list for parents, families and caregivers of children with hydranencephaly.
Subscription To Join: Send a blank email to hydranencephaly-subscribe@yahoogroups.com
or join online.
Listowner: Barb Aleman
Plagiocephaly
Support group for families of children with Positional Plagiocephaly.
"Plagio" is a deformation of the skull caused by any consistent
external pressure such as inutero constraint, back sleeping, etc, or encouraged
by torticollis, prematurity, etc
To Join: Send a blank email to Plagiocephaly-subscribe@yahoogroups.com
or join online.
Microcephaly
Discussion list for parents of children (of any age) with Microcephaly
and related developmental disabilities. Share stories about your kids
ups and downs, get advice and support, or just have someone to "listen".
To Join: Send a blank email to microcephaly-subscribe@yahoogroups.com
or join online.
Newborn Jaundice
This listserve is to provide information and emotional support to parent's
of children diagnosed with kernicterus or hyperbilirubinemia (high bilirubin).
Kernicterus is a rare neurological disorder characterized by excessive
levels of bilirubin in the blood during infancy. Symptoms may include
lack of energy (lethargy), poor feeding habits, fever, and vomiting.
To Join: Send a blank email to newbornjaundice-subscribe@yahoogroups.com
or join online.
NEURO Network (Neurodevelopmental Education
Understanding Reorganization Options Network)
Support group for parents whose children have been diagnosed with or are
experiencing issues such as: SID (sensory integration dysfunction), RAD
(reactive attachment disorder) or attachment issues, PTSD (posttraumatic
stress disorder), ODD (oppositional defiant disorder), ADD/ADHD, anxiety,
autism-spectrum disorders (including Aspergers and PDD-NOS), learning
disabilities, and speech & language delays. Many of our children are
adopted, although parents of biological children experiencing these issues
are also welcome.
To Join: Send a blank email to NEUROnetwork-subscribe@yahoogroups.com
or join online.
PVL (PeriVentricular Leukomalacia)
This list is to provide support and information to parents of children
with Periventricular Leukomalacia. Discussions are welcomed about finding
more information, raising a child with this disability and for applauding
their many achievements.
To Join: Send a blank email to pvl-subscribe@yahoogroups.com
or join online.
TS
Parents (Tourette's Syndrome Parents)
An email group for parents of kids who have Tourette's Syndrome and related
disorders like ADHD, OCD, Bipolar and high functioning Autism. Chatty.
Also several associated lists.
To Join: Send a blank email to TSparents-subscribe@yahoogroups.com
or join online
Listowner: Patti
Obsessive Compulsive Disorder (OCD)
OCD and Parenting List
Online support group for parents of children with OCD. advised by Dan
Suport for families of children with OCD. Professional advisors include:
Dr. Geller (massgeneral.org/pediatricpsych/staff/geller.html), Gail B.
Adams, Ed.D. (www.ocdawareness.com), Tamar Chansky, Ph.D. (www.worrywisekids.org),
and Aureen Wagner, Ph.D. (www.lighthouse-press.com).
To Join: Send a blank email to ocdandparenting-subscribe@yahoogroups.com
or join online.
List administrtor: Louis Harkins. Moderators: Wendy Birkhan, Chris Castle,
Cindy Joye, Kathy McDonald, and Gail Pesses.
OCD Family
Our family support group is for husbands, wives, sisters, brothers, friends,
other loved ones of those afflicted with OCD. We have a fair balance of
parents who have children afflicted w/OCD as well as wives with a husband
who has OCD, and husbands who have a wife w/OCD.
To Join: Send a blank email to ocd-family-subscribe@yahoogroups.com
or join online.
Prematurity Mailing Lists
Go to Premie Mailing
Lists, Groups, and Forums
Sensory Integration Mailing Lists
Sensory Integration Group
Discussion group for sensory integration; for information, education,
and therapy related to sensory integration; for support of families dealing
with sensory issues, children having behavioral and/or neurological difficulties,
identifying triggers, and looking at solutions.
To Join: Send a blank email to sensoryintegrationgroup-subscribe@yahoogroups.com
or join online.
Sensory Integration Dysfunction
Sensory Integration Dysfunction is as difficult to deal with for the parents,
as it is for the children that are diagnosed with it. Here, we can swap
ideas and get support and advice on how to deal with your child, the school
system, etc...
To Join: Send a blank email to sensoryintegrationdysfunction-subscribe@yahoogroups.com
or join online.
TLC-SID (Treat the underLying Causes of Sensory
Integration Dysfunction)
This group is for parents and professionals who want to talk about how
to Treat the underLying Causes of Sensory Integration Dysfunction (hence
TLC-SID). The discussions of this group are related to diet, supplements,
homeopathy, alternative therapies/treatments, medical testing or anything
related to helping us understand the underlying problems so that they
can be addressed most effectively.
To Join: Send a blank email to TLC-SID-subscribe@yahoogroups.com
or join online.
Shadow Syndrome Kids
Mailing list for parents of children that have been diagnosed with mild
forms of disorders like Asperger's Syndrome,CAPD,SID,ADD, ADHD or have
a number of comorbid syndromes making it difficult to understand what
is going on with him/her.
To Join: Send an email to ShadowSyndromeKids-subscribe@yahoogroups.com
or join online.
Shadow Syndrome Teens
Mailing list for parents of children that have been diagnosed with mild
forms of disorders like Asperger's Syndrome,CAPD,SID,ADD, ADHD or have
a number of comorbid syndromes making it difficult to understand what
is going on with him/her.
To Join: Send an email to ShadowSyndromeTeens-subscribe@yahoogroups.com
or join online.
Speech & Communication Mailing Lists
Parent Deaf HH (Parents of Deaf or Hard of Hearing
Children)
Support group for parents of deaf or hard of hearing children. This long
term discussion list is sponsored by the American Society for Deaf Children
(ASDC)
To Join: Send the message SUBSCRIBE PARENTDEAF-HH to PARENTDEAF-HH@LISTSERV.KENT.EDU
or subscribe online.
Listowners: Benna Timperlake and Sherry Ernsberger
Apraxia
Kids
A resource, discussion list for families of children with developmental
apraxia of speech (verbal dyspraxia) and the professionals
that care about them.
To Join: In the body of your email, send the message, SUBSCRIBE APRAXIA-KIDS
to LISTSERV@LISTSERV.SYR.EDU
join online
Listowners: Sharon Gretz
Auditory Processing
Individuals who have normal hearing but have difficulty with discriminating
words, listening in background noise, trouble following ongoing conversation,
and seem to have trouble paying attention when others are talking, may
have a central auditory processing disorder (CAPD). Open archives.
To Join: Send a blank email to AuditoryProcessing-subscribe@yahoogroups.com
or subscribe online.
CAPD (Central Auditory Processing
Disorders)
Central auditory processing disorders, primarily parents and educators.
High volume, active list.
To Join: Send the message, SUBSCRIBE CAPD to listserv@listserv.icors.org
or join online.
Listowner: Jay Lucker
Communicating
Parents and professionals help children with earning disAbilities (Autism,
Down Syndrome, PDD/NOS, etc.) communicate effectively using the methods
of Dr. James D. MacDonald of "Communicating Partners."
Subscription: Send a blank email message to communicating-subscribe@yahoogroups.com
or join online.
Listowner: Jenny Wendling
Late Talkers
Latetalkers is a discussion forum for anyone interested in the late development
of speech in children, regardless of cause. It is a low volume and
friendly list.
Subscription To Join: Send a blank email to
Latetalkers-subscribe@yahoogroups.com or join online.
Listowner: Karen
Childrens Apraxia Net
Late talker/speech delay vs. apraxia? The Cherab
Foundation is a nonprofit organization working to improve the communication
skills and education of children with speech and language delays and disorders.
While we outreach to any "late talker" our area of emphasis
is verbal and oral apraxia, severe neurologically-based speech and language
disorders that hinder children's ability to speak.
To Join: Send a blank email to
childrensapraxianet-subscribe@yahoogroups.com or join online.
PACT (Promoting Augmentative Communication Together)
A listserv for anyone interested in the field of augmentative and alternative
communication (AAC).
To Join: Send a blank email to PACT-subscribe@yahoogroups.com
or join online.
Listowner: Pam Harris
Vision Mailing Lists
APHAKIC (Association of Parents Having A Kid
In Contacts)
Association of Parents Having A Kid In Contacts is designed to provide
support for parents and health care professionals caring for young children
who have had cataracts. Despite the name, glasses-wearers are welcome.
To Join: Send a blank message to aphakic-subscribe@yahoogroups.com
or join online.
Blind Home
Schooler
A small but active group, mostly parents with a few VI teachers and aides.
All participants are interested in homeschooling, some full time and others
as supplemental education.
Subscription To Join: Send a blank email to blindhomeschooler-subscribe@yahoogroups.com
or join
online.
Listowner: Debbie Day
BVI
Parents (Blind or Visual Impairment)
BVI-Parents is a list for parents of children who are blind or visually
impaired to network and share ideas and experiences.
Subscription address: Send an e-mail to bvi-parents-subscribe@yahoogroups.com
or join online.
Listowner: Sarah Blake
Cortical
Vision Impairments
Please join if you are interesting in discussing CVI and issues with that
diagnosis.
Subscription address: Send an e-mail to Corticalvisionimpairments-subscribe@yahoogroups.com
or join online.
Listowner: Bridget A. Bailey
Lazy
Eye
A an acitive support list for parents of children with amblyopia, strabismus
or other conditions associated with "lazy eye."
Subscription address: Send an e-mail to lazyeye-subscribe@yahoogroups.com
or join online.
Listowner: Kate
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