Articles - Preemie Advocacy |
When Your Baby or Child is in
the Hospital
How to get the support and information you need when your baby or
child is in the hospital. Miriam Edelson |
Parent
Advocates : Born in the NICU
(Part 1 of After the NICU : The Birth of Effective Parent Advocates.)
Parents do not necessarily come to advocacy for their special children
by nature. They come to advocacy having survived the NICU--perhaps
the most emotional and stressful time of their lives. Allison Martin |
Roles of Effective
Parent Advocates
(Part 2 of After the NICU : The Birth of Effective Parent Advocates.)
The breadth and depth of the roles that these parents of children
with special needs must play in their child’s life. It is a difficult
and sometimes overwhelming responsibility, but the benefits are ultimately
rewarding. Allison Martin |
My
Goals for Advocating for Premature Children
I would hope that all parents, grandparents, friends of premature
children become advocates for premature childrens’ rights. Here is
my story and policy recommendation, which you can adapt and forward
to your local educators and political representatives. Patti Wrape |
No
One is an Island
The value of support groups. Pat Linkhorn |
Another
Monday?
A humorous look at life with a child with special needs. Pat Linkhorn |
Ask!
Take a tip from your kids... Ask until you get the right answer. Pat
Linkhorn |
Look
Through the Windows of My World
An open letter to educators from parents of children with special
needs. Pat Linkhorn |