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Books - preemies and prematurity


preemie

Encouraging preemie parents to advocate for their children.

Articles - Preemie Advocacy
When Your Baby or Child is in the Hospital
How to get the support and information you need when your baby or child is in the hospital. Miriam Edelson
Parent Advocates : Born in the NICU
(Part 1 of After the NICU : The Birth of Effective Parent Advocates.)
Parents do not necessarily come to advocacy for their special children by nature. They come to advocacy having survived the NICU--perhaps the most emotional and stressful time of their lives. Allison Martin
Roles of Effective Parent Advocates
(Part 2 of After the NICU : The Birth of Effective Parent Advocates.)
The breadth and depth of the roles that these parents of children with special needs must play in their child’s life. It is a difficult and sometimes overwhelming responsibility, but the benefits are ultimately rewarding. Allison Martin
My Goals for Advocating for Premature Children
I would hope that all parents, grandparents, friends of premature children become advocates for premature childrens’ rights. Here is my story and policy recommendation, which you can adapt and forward to your local educators and political representatives. Patti Wrape
No One is an Island
The value of support groups. Pat Linkhorn
Another Monday?
A humorous look at life with a child with special needs. Pat Linkhorn
Ask!
Take a tip from your kids... Ask until you get the right answer. Pat Linkhorn
Look Through the Windows of My World
An open letter to educators from parents of children with special needs. Pat Linkhorn

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