Children's Disability Lists of Lists
The Children's Disability List of Lists
provides an annotated list of Support Groups for families of children
with disabilities and special needs. Each disability mailing and support
group list is validated for usefulness and family orientation.
ADD/ADHD Support Groups
ADD ADHD Parents
Mailing list that addresses Attention Deficit or Attention Deficit/Hyperactive
Disorder in children, teens & adults, along with other Disorders (OCD,
ODD, CAPD, Downs). Through sharing of experiences we can learn from each
other to help our children to become productive adults.
To Join: Send a blank email to ADD-ADHD-Parents-subscribe@yahoogroups.com
or join online.
Listowner: Cindy Shook
ODD Parents Room
Open group for parents of kids with Oppositinal Defiant Disorder (ODD),
Conduct Disorder (CD), Attention Deficit Disorder (ADD/ADHD) and various
other behavior and mental disorders. A place for parents to relax!
To Join: Send a blank email to oddparentsroom-subscribe@yahoogroups.com
or join online.
ADHD Children
This group is for Parents who want to talk about their childs ADHD problems.
To Join: Send a blank email to ADHD_Children-subscribe@yahoogroups.com
or join online.
Children with ADHD
Attention Deficit Hyperactive Disorder in children is frustrating and
exhausting to the child and the family. Schools find these kids generally
a burden, and often lack the understanding, skills and training to effectively
deal with and help kids with ADHD succeed. We need to support one another
through discussion of what works, what doesn't, medications, and all those
issues that surface when loving a child who has the disease of ADHD. .
. and it is a disease.
To Join: Send a blank email to Children-with-ADHD-subscribe@yahoogroups.com
or join online.
ADHD Parents Support Group
A large parent support group for parents whose children who have ADHD.
Open forum.
To Join: Send a blank email to adhdparentssupportgroup@yahoogroups.com
or join online.
NIDS
(Neuro Immune Dysfunction Syndromes
From Dr. Michael Goldberg, this information and support forum is for families
affected by Neuro Immune Dysfunction Syndromes. Our focus includes: Autism
/ ASD, Asperger's / AS, PDD, ADD/ADHD, CF / CFIDS / ME and others -- who
are following or considering following the NIDS protocol.
To Join: Send a blank email to NIDS@yahoogroups.com
or join online.
001 ADD-ADHD
This restricted member support group is for parents who have school-aged
children living in their home with ADHD, as well as other disabilities.
Listowner: Kimberly Zim
To Join: Send a blank email to 001add-adhd@yahoogroups.com
or join online.
Adoption Support Groups
Go
to the Directory of Adoption Support Lists
Allergy & Asthma Support Groups
Asthma
Parents
Mailing list provided by Ed's Asthma Track for parents of children with
asthma to discuss their questions and concerns.
To Join: Send a blank email to asthma-parents-subscribe@yahoogroups.com
or join online.
Families Dealing with Asthma
A group for parents or members of families including children who have
asthma. A place to ask questions, offer advice, vent, celebrate,and commiserate
with other families who have "Been There, Done That"...
To Join: Send a blank email to Families_Dealing_with_Asthma-subscribe@yahoogroups.com
or join
online.
Allergy
Allergy discussion group. Not a family mailing list, but may be of interest
to family members. Moderated.
To Join: Send an email with the message SUBSCRIBE ALLERGY YourFirst Name
YourLastName to LISTSERV@listserv.uark.edu
or join online.
Listowner: Ballew Kinnaman
Eczema
A large international support group for eczema, based in the United Kingdom.
To Join: Send an email with the message SUBSCRIBE ECZEMA to LISTSERV@LISTSERV.ICORS.ORG
or join via online.
Listowners: David Hough, Stuart Purdie, Brigit van Loggem, and Paula Ford
Eczema Parents Circle
A discussion group for parents of children with eczema. Having a child
who suffers from eczema is sometimes difficult, and we as parents feel
isolated from those who haven't "been there". This is a place
to express how eczema has affected you as a parent as well as listen to
others share their emotions and experiences.
To Join: Send a blank email to Eczemaparentscircle-subscribe@yahoogroups.com
or join online
Listowner: Darlene Searle
Cel
Kids (Celiac Kids)
Celiac/Coeliac Wheat/Gluten-Free children list. (There is also an adult
list).
To Join: Send email with the message, SUBSCRIBE CEL-KIDS FirstName LastName
to LISTSERV@LISTSERV.ICORS.ORG
or join online.
No Milk
Milk, Casein and Lactose-Free List. Includes families and individuals
on these diets.
To Join: Send an email with the message SUBSCRIBE NO-MILK to LISTSERV@LISTSERV.ICORS.ORG
or join online.
Listowner: Max Desorgher
Autism / Aspergers / PDD Support Groups
Asperger
Mailing list for discussions of all aspects of Asperger Syndrome (AS)
and other forms of high-functioning autism, including Pervasive Developmental
Disorder (PDD). Subscription requires owner approval. A high volume list.
To Join: Send email with the message, SUBSCRIBE ASPERGER to listserv@listserv.icors.org
or join online.
Listowners: Head Listowner - Ellen Dietrick; Co-listowners - Karen Reznek,
Sandy Sebree, Phil Schwarz , Dave Spicer, Tee Forshaw, Barry Conner
Autism
Tthe oldest ongoing discussion list for autism, provides general autism
support.
To Join: Send email with the message subscribe [password] [digest|nodigest]
[your email address] to autism-request@lists.apana.org
[Commands in brackets are optional.]
or join online.
Listowner: Carolyn Baird. Panel Representatives: Ray Kopp, Linda Carlton,
Kevin Kramer
Autinet
An unmoderated parent support group and news service for Autism and Asperger's
Syndrome, running since 1996.
To Join: Send the message with "SUBS" in the subject line to
autinet@autinet.org. In your
message to listowner Peter Wise include a little about yourself, your
interest in Autism and Asperger's Syndrome, and your COUNTRY of residence
(for statistical reasons).
Aspergers
Support
Mailing list for parents of children with Asperger's Syndrome or High
Functioning Autism.
To Join: Send a blank email to AspergersSupport-subscribe@yahoogroups.com
or join online.
PDD BP KidS (Pervasive Development Disorder
Bipolar Kids)
This group is for parents and primary caregivers of children diagnosed
with PDD (Pervasive Developmental Disorder), Autistic Spectrum Disorder
(Autism, Asperger's Syndrome, PDD-NOS, Rhett's Syndrome, Childhood Disintigrative
Disorder), and BP (Bipolar Disorder).
To Join: Send a blank email to PDD-BPkids-subscribe@yahoogroups.com
or join online.
Home Schooling Aspies
Support list for Christian moms who homeschool (or are seriously considering
homeschooling) their children who have been diagnosed with Asperger's
Syndrome (or suspect their child has Asperger's Syndrome). All are welcome
to join, but there will be a Christian focus to many of the posts. We
are here to encourage, support, and pray for one another as we do our
best to teach our Aspies at home.
To Join: Send a blank email to homeschoolingaspies-subscribe@yahoogroups.com
or join online.
Aut-2B-Home (Autism To Be Homeschooled)
Listserv for homeschooling children with autism.
To Join: Send email with the message, SUBSCRIBE AUT-2B-HOME to LISTSERV@LISTSERV.ICORS.ORG
or join online.
Autism Awareness Action
A moderately high volume group to help parents find autism related resources
and support, not state specific but is associated with a Texas autism
group.
To Join: Send a blank email to autism-awareness-action-subscribe@yahoogroups.com
or join online.
Autism Aspergers
A high quality, high volume support list where parents share stories,
treatments, therapies, ideas, advice and support about their children
with moderate to high functioning autism or Aspergers syndrome.
To Join: Send a blank email to Autism-Aspergers-subscribe@yahoogroups.com
or join online.
Parenting Autism
An excellent, high volume parent support group to share the day-to-day
experience of being a parent of an autistic child.
To Join: Send a blank email to Parenting_autism-subscribe@yahoogroups.com
or join online.
Autism Behavior Problems
Helpful discussion, aid and support in dealing with these behaviors present
in the autistic child. Support on topics for all ranges of behaviors...self
stimulating, self injurious, aggressive, inappropriate etc and different
ways of addressing these problems.
To Join: Send a blank email to AutismBehaviorProblems-subscribe@yahoogroups.com
or join online.
Autism in Girls
Restricted membership! This is a high quality list for parents and professionals
who wish to exchange information regarding treatment of autism in girls,
how autism effect females in the family, and any other issues dealing
with autism and females and/or the comparison of males and females with
autism.
To Join: Send a blank email to Autism_in_Girls-subscribe@yahoogroups.com
or join online.
Autism
Adolescence
Autism Spectrum Disorders and adolescence support for parents who have
Pre Teen, or teenaged children. Though all are welcome here. Please free
to share your stories, advice, woes, rants, tears, and especially laughter
here with us.
THIS IS A HIGH VOLUME LIST.. http://www.geocities.com/alleycatjo/Autism.html
Awaiting review.
Children with Autism
High volume parent support list for autism.
To Join: Send a blank email to children_with_autism-subscribe@yahoogroups.com
or subscribe online.
Floortimers Floor Timers
A small group, but an important topic. Parents, caregivers, therapists,
educators and related professionals who work with children using using
a floortime approach share ideas and provide support for one another.
To Join: Send a blank email to floortimers-subscribe@yahoogroups.com
or join online.
HDO Therapy for Autism
Hyperbaric Oxygen Therapy (HBOT), or more accurately, High Dosage Oxygen
Therapy (HDOT} is fast becoming one of the more successful therapies for
children with Autism. Autism is a neurological injury whether caused by
toxicity, birth injury or unknown. Some amazing results are being obtained,
especially with young children.
To Join: Send a blank email to HDOTherapyforAutism-subscribe@yahoogroups.com
or join online.
Verbal Behavior
A high volume moderated forum for teaching verbal behavior (VB) within
a program of applied behavior analysis (ABA). Discussions include difficulties
in the development of communication seen in most individuals with autism
and other related disabilities, with an emphasis on functional language
and motivational variables using ABA techniques.
To Join: Send a blank email to VerbalBehavior-subscribe@yahoogroups.com
or join online.
Listowner: Christina Burk ChristinaBurkABA@aol.com
Autism ABA
The Autism and ABA list is an open, unmoderated forum for discussing anything
related to autism. Much of our discussion centers around Applied Behavior
Analysis (ABA), including areas of ABA such as teaching Verbal Behavior
(VB) and Natural Environment Training (NET). We're a quiet list, but we
have a healthy mix of parents, professionals, and others involved with
autism in some way.
To Join: Send a blank email to autismaba-subscribe@yahoogroups.com
or join online.
Listowner: Christina Burk ChristinaBurkABA@aol.com
DTT-NET (Autism: AVB: ABA: Verbal Behavior)
A moderated list for parents and professionals running home (and school)
programs to discuss concerns and share their knowledge of Applied Verbal
Behavior (AVB), a specialty within the field of Applied Behavior Analysis
(ABA).
To Join: Send a blank email to DTT-NET-subscribe@yahoogroups.com
or join online.
Listowners: Jenn Godwin and Steph Hulshof
ANDI_ADI
(Autism Network for Dietary Intervention)
This is an ADVANCED autism-diet discussion group moderated by ANDI, the
Autism Network for Dietary Intervention. The purpose of this list is to
provide a forum for discussion regarding advanced dietary treatment options
such as the Specific Carbohydrate Diet (SCD), the Body Ecology Diet (BED),
grain-free, sugar-free, low oxalates, supplementation, and other dietary
interventions for children with autism spectrum disorders.
To Join: Send a blank email to ANDI-ADI-subscribe@yahoogroups.com
or join online.
GF CF Kids (Gluten-Free Casein-Free Kids)
This high volume, unmoderated list provides discussion forum for parents
of children on the autism spectrum who are avoiding gluten and casein
and other substances in their children's diets.
To Join: Send a blank email to GFCFKids-subscribe@yahoogroups.com
or join online.
Enzymes and Autism
The Enzymes and Autism forum is a high volume list for the discussion
of digestive enzymes (and many other types of supplements) and thier effect
on the autistic spectrum/PDD, attention deficit, sensory integration,
digestion/malabsorption, and food sensitivities/allergies.
To Join: Send a blank email to EnzymesandAutism-subscribe@yahoogroups.com
or join online.
Chelating Kids 2
A restricted discussion list of parents with children who have autism/
mercury poisoning and are using chelation.
To Join: Send a blank email to chelatingkids2-subscribe@yahoogroups.com
or join online.
Listowner:
Gluten-Free Casein-Free Recipes
High volume group to share recipes for cooking a gluten-free, casein-free
diet for chidren.
To Join: Send a blank email to GFCFrecipes-subscribe@yahoogroups.com
or join online.
ABMD (Autism BioMedical Discussion)
High volume group for discussions by parents and professionals of research
and biomedical interventions as they apply to the investigation and treatment
of autistic spectrum disorders.
To Join: Send a blank email to abmd-subscribe@yahoogroups.com
or join online.
Brain Injury Support Groups - see Neurological
/ Brain Impacts
Birth Defects / Congenital Support Groups
Cleft
TAlk
Mailing list for families who have children born with cleft palate or
cleft lip defects.
To Join: Send the message, SUBSCRIBE CLEFT_TALK2 Your Real Name to majordomo@bmtmicro.com
Listowner: Joanne Green
Cleft Chat
For parents of children born with cleft lip and/or cleft palate. Our list
is open to all to freely express their feelings, get support and to learn
in a positive environment.
To Join: Send a blank message to cleftchat-subscribe@yahoogroups.com
or join online.
FAS
Link (Fetal Alcohol Syndrome)
Mailing list for people interested in Fetal Alcohol Syndrome/Fetal Alcohol
Effects.
To Join: Send the message, SUBSCRIBE FASLINK to majordomo@listserv.rivernet.net
Listmoderator: Bruce Ritchie
PD
Heart (Pediatic Heart)
Active mailing list for families of children with Congenital Heart Defects
(CHD) and Childhood Onset Heart Disease. (The Children's Health Information
Network has a number of other pediatric heart lists. A complete set of
their lists is at http://tchin.org/support/index.htm
)
To Join: Send a blank message to: pdheart-on@tchin.org.or
join online.
Listowner: Mona Barmash
CHD Families (Congenital Heart Defects)
A support group for resources and support for parents, grandparents and
siblings of children born with Congenital Heart Defects. Affliated with
Families Raising Awareness of CHD, One Heart At A Time.
To Join: Send blank email to CHDFamilies-subscribe@yahoogroups.com
or join online.
Down Syndrome Groups
Down Syn (Down Syndrome)
A well established and active list for discussion of Downs Syndrome. Members
include parents, siblings, other relatives, friends, therapists, physicians,
and of course people with Down Syndrome.
To Join: Send an email with the message, SUBSCRIBE DOWN-SYN Your Real
Name to LISTSERV@LISTSERV.NODAK.EDU
or subscribe online
Listowner: Bill McGarry
Ups N Downs (Families Involved with Down Syndrome)
An international support group for family members of people with Down
syndrome, in existence since 1995. The focus is on the family and not
just the family member with Down syndrome.
To Join: Send a blank email to
UpsNDowns-subscribe@yahoogroups.com or subscribe online.
DownSyn Forum (Down
Syndrome for New Parents)
An active open, moderated web based board for parents of children with
Down Syndrome. Topics include prayer requests, education, PDD/autism,
open discussion and more. To join, visit the DownSyn forum at http://www.downsyn.com/phpbb2/index.php
Downs Heart
Support and information for those whose child is facing heart surgery,
who has had surgery, those whose condition is inoperable, and those families
who are bereaved. This online community is linked to Down's Heart Group,
a UK charity which provides support and information related to the cardiac
issues associated with Down's Syndrome.
To Join: Send a blank email to Downs-Heart-subscribe@yahoogroups.com
or subscribe online.
Mosaic
DS · Mosaic Down Syndrome
A support list for parents whose babies/children/adult children have been
diagnosed with Mosaic Down Syndrome.
To Join: Send a blank email to
MosaicDS-subscribe@yahoogroups.com or subscribe online.
Down Syndrome
A list for parents of children with Down Syndrome to brag, talk about
concerns, medical problems, schooling,therapy, and so on. A good group
for parents of young chidren but apparenlty unmoderated.
To Join: Send a blank email to down_syndrome-subscribe@yahoogroups.com
or subscribe online.
Homeschooling and Down Syndrome
Discussion list for families who are homeschooling or want to homeschool
their child with Down Syndrome.
To Join: Send a blank message to
homeschoolinganddownsyndrome-subscribe@yahoogroups.com or subscribe
online.
DS-Autism
(Down Syndrome & Autistic Spectrum)
DS-Autism is a discussion list for families, parents, and professionals
interested in the dual diagnosis Down Syndrome and Autism. The list is
a service of the Down Syndrome & Autism Internet Information Center
and Creating Solutions.
To Join: Send a blank email to ds-autism-subscribe@yahoogroups.com
or subscribe online.
Listowners: Joan Guthrie Medlen, Donna Duffey, and Mary Beth Pilewski
Paul.
Feeding Support Groups
G
Tube
Support for those using feeding tubes (g-tubes etc.). Gtube is an unmoderated
discussion and support group for family, caregivers and professionals
who are working with people of all ages who have, have had, or are about
to have, a feeding gastrostomy (g-tube) J-tube, NG-tube or GJ-tube.
To Join: Send the message SUBSCRIBE GTUBE YourFirstName YourLastName to
listserv@listserv.syr.edu
or join online.
Listowner: Ward Scarf
Feeding
A great resource for parents of infants and young children with feeding
disorders, especially those related to disability, premature birth or
other developmental issues. Parents share information on medical treatments,
feeding tips, and products.
To Join: Send a blank email message to feeding-subscribe@yahoogroups.com
or join online.
Listowner: Laura Williams
Breastfeeding Reflux
A discussion group to provide support and share experiences with those
who are breastfeeding a baby with reflux and GERD. All moms of refluxers
are welcome, regardless of the amount you are breastfeeding, the degree
of reflux, or the age of your baby.
To Join: Send a blank email message to breastfeedingreflux-subscribe@yahoogroups.com
or subscribe online.
Reflux
Parents
For parents with older children (over 4 years) suffering from Gastroesophageal
Reflux or related motility disorders.
To Join: Send a blank message to RefluxParents-subscribe@yahoogroups.com
or join online
Listowner: Nancy Dougherty
Reflux
Toddlers
For parents of children ages 2 - 4 years old suffering from GERD and related
motility disorders.
To Join: Send a blank message to RefluxToddlers-subscribe@yahoogroups.com
or join online
Listowner: Nancy Dougherty
Reflux
Moms 5
For moms with babies under 2 years of age, suffering from Gastroesophageal
Reflux Disorder.
To Join: Send a blank message to Refluxmoms5-subscribe@yahoogroups.com
or join online.
Listowner: Nancy Dougherty
GERD Support (Gastroesophageal Reflux Disease)
Support group for people with the painful disease GERD (acid reflux disease/heartburn)
or those giving support to someone with GERD. This group is for adults
- not children - but is relatively friendly and informative and not over
run by spammers.
To Join: Send a blank message to gerdsupport-subscribe@yahoogroups.com
or join online.
Infectious Diseases Support Groups
CMV (Cytomegalovirus)
Cytomegalovirus (CMV) is a herpes type virus with complications ranging
from unnoticed to devastating, especially dangerous to a developing fetus.
To list a few: death, miscarriage, intracranial calcification, Cerebral
Palsy, seizure disorder, deafness, visual impairment, profound delays
and mental retardation, microcephally, mal-absorption difficulties, feeding
difficulties, CMV retinitis.
To Join: Write to listserv@listserv.syr.edu
and put CMV in the body of the post or join online.
Listowner: Tina Konczol
GB Strep (Group B Streptococcus)
Group B Streptococcus (GBS) is a bacteria that is found in the in the
vagina and/or lower intestine of 10-35% of all healthy, adult women. Approximately
8,000 babies in the U.S. contract serious GBS disease each year. Up to
20% of the babies who survive GBS-related meningitis may develop serious
handicaps, including hearing or vision loss, varying degrees of physical
and learning disabilities, and cerebral palsy.
To Join: Send blank email to gbstrep-subscribe@yahoogroups.com
or join online.
Hepatitis-B
A mailing list where information and support regarding hepatitis B can
be shared in an atmosphere of compassion and friendship. List members
include those who are Hepatitis B sufferers, their family or friends,
or any other interested parties.
To Join: Any message sent to HEPATITIS-B-ON@MAIL-LIST.COM
will start the subscription process.
Listowners: Steve Bingham, Sheree Martin
P
Kids-List
The primary mailing list for parents of kids with chronic viral infectious
diseases.
To Join: Send the message SUBSCRIBE to PKIDS-LIST-REQUEST@MAIL-LIST.COM
or join online.
General Children's Disabilities (Special Needs
Parenting)
Our
Kids
An excellent, well-established support group for parents of children with
physical and/or mental disabilities and delays.
To Join: In the body of your email, send the message, SUBSCRIBE OUR-KIDS
Your Real Name to listserv@listserv.syr.edu
or join online.
Listowner: Randy Ryan
Birth
to Three Support
Support for parents and professionals in Birth to Three Programs or Early
Intervention or ECI programs.
To Join: Send a blank message to BirthtoThreeSupport-subscribe@yahoogroups.com
or join online.
Listowner: Bridget A. Bailey
Special
Child Exchange Equipment Board
Discussion group and equipment exchange group to buy, sell, trade or donate
equipment for special needs children. Helps families locate necessary
medical supplies and/or durable medical equipment that is not being utilized.
To Join, visit http://groups.yahoo.com/group/SCE-Equipment/
Child Dev Delays (Children with Developmental
Delays)
Mailing list for parents of a child (or children) with developmental delays
(speech and language, motor, cognitive, sensory, emotional and social,
etc.).
To Join: Send a blank message to childdevdelays-subscribe@yahoogroups.com
or join online.
Parents of Severely Disabled Kids
A support group for parents and families of children who are Severely/Profoundly
disabled. Parents can find support for different disabilities including
Cerebral Palsy Developmental Delays, Failure to Thrive, Feeding Tubes,
Mentally Impaired, special needs, Spina Bifida, Seizures, Brain Injured,
Scoliosis, CMV, Microcephaly, and many others as well.
To Join: Send a blank message to ParentsofSeverelyDisabledKids-subscribe@yahoogroups.com
or join online.
Listowners: Judy, Lynne, and Christine
Rare Dis (Rare Disorders)
Rare Disorders mailing list for resources on any rare disorder and/or
to network with other people with the same disorder. Not very active,
but you can read the archives and if you post a question you will likely
receive an answer.
To Join: Send the message, SUBSCRIBE RARE-DIS Your Name to LISTSERV@LISTSERV.ICORS.ORG
or join online.
Listowner: Bill McGarry
CP-SK : Christian
Parents Special Kids
A support group for Christian Parents parenting children with a wide variety
of special needs.
To Join: Send a blank message to CP-SK-subscribe@yahoogroups.com
or join online.
Listowner: Lisa Little
Our Special Needs Children
Support group for parents of Special Needs Children, who have any of the
following: Hypotonia, Speech Language Disorders, Apraxia, Dyspraxia, Developmental
Delays, Sensory Integration Dysfunction, APD, Autistic Tendencies, PDD.
I want this to be a place to share information, such as new treatments,
supplements, diets, therapies, doctor recommendations, or just to ask
advice or get support.
To Join: Send an email to OurSpecialNeedsChildren-subscribe@yahoogroups.comn
or join online.
Special Child Exchange
A place to trade, sell, or donate special needs equipment and related
baby and children's supplies.
To Join: Send an email to SpecialChildExchange-subscribe@yahoogroups.comn
or join online.
Listowner: Steve Gay
Genetic Support Groups
Families of Angelman Syndrome
A place for families to talk about Angelman Syndrome and give each other
support on raising a child with Angelman Syndrome.
To Join: Send a blank email to familiesofangelmansyndrome-subscribe@yahoogroups.com
or join online.
ARPKD (Autosomal Recessive Polycystic Kidney
Disease)
This list is for anyone who's lives have been affected by ARPKD Autosomal
Recessive Polycystic Kidney Disease. Autosomal recessive polycystic kidney
disease (ARPKD) is the most common heritable cystic renal disease occurring
in infancy and childhood.
To Join: Send a blank email to ARPKD-subscribe@yahoogroups.com
or join online.
Cystic
L (Cystic Fibrosis List)
Exchange of information and support specific to cystic fibrosis. Members
include people with CF and those who share their lives: medical professionals,
scientists, researchers, parents, grandparents, spouses, siblings, friends
and significant others.
To Join: Send an email with the message SUBSCRIBE CYSTIC-L Your Real Name
to LISTSERV@PEACH.EASE.LSOFT.COM
or subscribe online.
Ped PID (Pediatric Primary Immune Deficiency)
This list brings together parents and caregivers of children affected
by a Primary Immune Deficiency.
To Join: Send a blank email to PedPID-subscribe@yahoogroups.com
or subscribe online.
Panhypopituitarism
This list is for parents and caregivers who have children with pituitary
disorders. Discussion may also include disorders of the endocrine system,
hypoglycemia, growth hormones and steriods.
To Join: Send a blank email to panhypopituitarism-subscribe@yahoogroups.com
or join online.
Pierrerobin
· Pierre Robin Network
Pierre Robin Network is comprised of parents, caregivers, family members,
medical professionals and adults with Pierre Robin Syndrome.
To Join: Send a blank email to
pierrerobin-subscribe@yahoogroups.com or join online.
Rare Genetic Disorders (Triple X or Trisomy
X Syndrome)
This is a group for parents, parents-to-be, other family members, and
the women themselves to share regarding the diagnosis of an extra X.
To Join: Send a blank email to raregeneticdisorders-subscribe@yahoogroups.com
or join online.
Tri-Med
Discussion of medical issues related to Trisomy chromosmal disorders.
The Trisomy Online also provides 5 different lists for Trisomy 18, Trisomy
13 and other related chromosomal disorders. Visit their website to see
each topic.
To Join: Send an e-mail to Tri-Med-request@freelists.org
with the word SUBSCRIBE in the subject line or join online.
Listowner: Karen Schuler
Torticollis
Kids
For parents and caregivers of children with congenital muscular torticollis
(CMT) to share information and ideas.
To Join: Send a blank email to Torticolliskids-subscribe@yahoogroups.com
or join online.
TS Parents-3 (Turner Syndrome Parents)
A discussion group for parents of children with Turner Syndrome, a genetic
disorder that affects about one in every 3000 girls.
To Join: Send a blank email to TSParents-3-subscribe@yahoogroups.com
to or join online.
Go to Page 2 of Children's
Disability Lists.
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