Hepatitis
B Resources
Annotated Hepatitis B internet resources for parents
adopting from Asia.
Compiled by Allison Martin
See also: Adoption Health Clinics
Hepatitis
B Support Mailing Lists
Email support and information for those with hepatitis
B concerns.
Adoption Health & Hepatitis
B on Comeunity
Essential articles on Hepatitis B for adoptive parents on the Comeunity
website, including the Hepatitis B and Adoption
from Asia FAQ.
HepNet
- The Hepatitis Information Network
3535 Trans-Canada Highway, Pointe Claire, Quebec, Canada
H9R 1B4
News, articles, information for doctors and patients - this site is well
worth a visit. An excellent collection of articles on hepatitis infection
and treatment, including:
o Hepatitis
infection and its prevelance among Chinese populations.
o Hepatitis
B in Taiwan
Hepatitis
B Foundation
700 East Butler Avenue, Doylestown PA 18901-2697 Phone: 215.489.4900
fax: 215.489.4920
A good resource about hepatitis information for parents, including an
explanation of blood tests. Basic information for adoptive parents is
provided in brochures and online. Also, you can contact the Hepatitis
B Foundation to speak with a parent who has adopted a child with HBV.
Center
for Disease Control
Toll free telephone for hepatitis information: (888) 4HEPCDC
or (888) 443-7232
Federal center for information on diseases in the United States.
o CDC
Travel Information
o Hepatitis
B Factsheets
Hepatitis
B Coalition
1573 Selby Avenue, St. Paul MN 55104 Tel: 612-647-9009 Fax: 612-647-9131
Numerous articles on immunization and hepatitis infection; some are
translated into Hmong, Chinese, Korean, Vietnamese and Laotian.
o What
the Physician Can Do to Help the Child Who is a Hepatitis B Carrier
o Basic
Knowledge About Hepatitis Infections (see chart on interpretation
of test results)
Is
There Life after Hepatitis B? by Jerri Ann Jenista, MD
Most children with chronic hepatitis B can look forward to a full and
normal life.
Infectious
Disease and the Internationally Adopted Child by Jerri
Ann Jenista, MD
Excellent discussion of infectious disease in adopted children.
Hepatitis
B: No
Guarantee by Jerri Ann Jenista, MD,
Dana E. Johnson, MD, Laurie C. Miller, MD, Dennis L. Murray, MD
A warning about the accuracy and dangers of pre-adoption testing for
Hepatitis B.
Dr.
Jane Ellen Aronson
International Pediatric Health Services, 151 East 62nd Street,
Suite 1A, New York, New York 10021
Medical issues related to international adoption.
o The
importance of Hepatitis B vaccinations for adoptive parents before placement.
o Adoption
from China & Hepatitis B.
American
Liver Foundation
75 Maiden Lane, Suite 603 New York, NY 10038 1-800-GOLIVER (1800-465-4837)
News, research, and conferences.
PK Kids
- Parents of Kids with Infectious Diseases
A great resource for parents of children with hepatitis b and other
infectious diseases.
Hepatitis
Foundation International
30 Sunrise Terrace, Cedar Grove, NJ 07009-1423, USA Phone: 973.239.1035
or 800.891.0707
FAQs and research summaries on hepatitis.
Children's
Liver Alliance
3835 Richmond Avenue, Box 190, Staten Island, New York 10312 USA Telephone/Fax:
718-987-6200
Information on the liver and transplants, including: research summaries
and a parents newsletter.
Hepatitis
B Vol 4.2 by Stuart Millinship,
Health On the Net Foundation
This comprehensive FAQ by a layperson aims to strike a middle ground
between the basic information available to the general public and the
highly technical information in medical journals.
Hepatitis
Support Mailing Lists
HBV
Adoption List
HBV-Adoption is for parents of children adopted internationally who have
the Hepatitis B virus. A wonderful resource. Subscribe via Yahoo
at http://groups.yahoo.com/group/hbv-adoption
PKids-List
PKIDs (Parents of Kids with Infectious Diseases) is for parents of kids
with chronic viral infectious diseases. An educated and helpful group
of parents participate on this list. To join, send the message: SUBSCRIBE
To this address: PKIDS-LIST-REQUEST@LISTS.TRANSPORT.COM
Hepatitis-B
Information and support regarding hepatitis B is shared in an atmosphere
of compassion and friendship.
A great resource for individuals coping with hepatitis B, adoptive parents
are welcome. To subscribe send any message to: HEPATITIS-B-ON@MAIL-LIST.COM
HEPV-L
Hepatitis Discussion List for people who have diagnosed with chronic hepatitis
and liver infection, also family members and professionals. To join, send
the message: SUBSCRIBE HEPV-L Your Name
To this address: LISTSERV@MAELSTROM.STJOHNS.EDU
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